The Spina Bifida Foundation Victoria (SBFV) is a dynamic and professional not-for-profit organisation helping individuals and families living with spina bifida. Located in the Melbourne, SBFV provides advocacy, information, services and programs to help people with spina bifida to lead full, active and independent lives. The SBFV is also a strong advocate for folate fortification for the prevention of neural tube defects including spina bifida. The SBFV does not receive government funding and relies grants, philanthropy and donations for support. The SBFV has DGR status and is registered with the Australian Charities and Not for Profits Commission (ACNC).