- Location: North Ryde, NSW
- Category: Health
Rose Cottage, 2 Richardson Place
North Ryde NSW 2113
Every four days, a child is born with Cystic Fibrosis. There are over one million carriers in Australia alone and most are not even aware that they carry this life shortening genetic condition.
Cystic Fibrosis organisations in Australia provide support and services to people with Cystic Fibrosis (CF) and their carers and families.
Cystic Fibrosis Australia funds research into better treatments and ultimatley a cure for CF. We also manage the CF data registry, lead the national research program, conduct a biennial CF Conference, and support the quality improvement program including the clinic peer review program and the CF Standards of Care and Infection Control Guidelines.
Most importantly we advocate on behalf of the CF Community. We raise awareness through sharing the stories of the CF Community and lobby local, state and federal Governments and Pharmaceuticals to provide access to the best possible treatments and care.
The members of Cystic Fibrosis Australia are our State and Territory Organisations whom provide much needed services and information to the CF Community.