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Syndromes Without A Name (SWAN) Australia

SWAN?Australia is a not for profit charity which provides information, support and systemic advocacy for families caring for a child with an undiagnosed or rare genetic condition. We organise peer support events and networking opportunities to help SWAN families connect and reduce the pain of isolation, frustration and anxiety. SWAN advocates for increased funding for genetic research, free and equitable access to genomic testing and decreased waiting periods. We provide a public voice for our families, campaigning for improved disability support services, better community education and greater resources and pathways so that SWAN children can thrive.