Williams Syndrome Association of Western Australia Incorporated

The Williams Syndrome Association of WA Inc is a registered charity devoted exclusively to improving the lives of individuals with Williams Syndrome and their families. Our aim is to raise community awareness and bridge the need for connection of the WS families in WA (including newly diagnosed families) with each other, health care providers and the community. This allows our members to obtain much needed emotional support and information to help them understand and cope with the life changing and permanent effect of being a person with WS or a family member, guardian or carer for someone with WS. Williams Syndrome (WS) is a rare genetic disorder that is present at birth and can affect anyone. It is characterised by medical problems, including cardiovascular disease and connective tissue related problems; developmental delays; learning disabilities, attention deficit disorder; anxiety and phobias. These occur side by side with striking verbal abilities, highly social personalities and an affinity for music. The Williams Syndrome Association of WA Inc was established in 2014 by a group of parents with children born with WS. Starting as a support group in 2008, our small group grew, thus establishing an official association and charity. There are approximately 40 individuals with WS in the association from 1 to 48 years old. Whilst having this syndrome may appear a disability, they are happy, loving and affectionate humans with a beautiful soul.