Silent Sight Foundation

The Silent Sight Foundation is dedicated to accelerating research and treatment development for Usher Syndrome Type 1B — a rare genetic condition that causes profound deafness, balance issues, and progressive childhood‑onset blindness. Silent Sight Foundation was established to address a critical need: although the scientific capability exists to develop effective therapies, progress has been slowed by significant gaps in funding. The foundation’s mission is to remove these barriers by raising awareness, driving investment into promising research, and supporting innovative pathways that have the potential to preserve and restore vision. Silent Sight is committed to ensuring that children and families affected by Usher Syndrome are not left waiting as precious time passes. Through community support, advocacy, and strategic funding, the foundation leads an urgent effort to protect the gift of sight for future generations.