DEBRA Australia Ltd (trading as DEBRA Australia) is a national dedicated not for profit organisation supporting families living with Epidermolysis Bullosa (EB) via our various programs.
DEBRA Australia exists to improve the quality of life for individuals affected by EB, a rare, life-limiting genetic skin condition with no known cure. It supports families and carers through specialised care and tailored programs. Severe cases of EB can lead to disability, isolation, and exclusion from everyday life. DEBRA is committed to equity and inclusion, advocating for access to opportunities and improved specialist care.
Founded in 2005, DEBRA is a patient-led not-for-profit organisation shaped by lived experience. It remains the only Australian entity solely dedicated to supporting the EB community, delivering vital programs that fill gaps in the healthcare system.
Funded by donations, grants, and fundraising, DEBRA operates with strong governance and operational capacity to deliver specialised EB care and responsive services.
DEBRA Australia’s new five-year business and fundraising strategy, commencing in 2025, focuses on responding to community needs, increasing resources, and deepening our impact on quality of life. This will be achieved by expanding access to treatment and services, driving EB research, and building greater national awareness and advocacy, enabling a sense of dignity and belonging, whilst enhancing the quality of life for all people living with EB.
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